Speyside partnered with a global biotech company specializing in rare diseases to raise awareness of the current standard of care and strengthen engagement with patient organizations. The project included stakeholder mapping, workshops, informational sessions, an ambassador program, and tailored communication materials for patients and healthcare professionals. Outcomes included nationwide workshops with patient groups, distribution of strategic materials to key audiences, and the identification of local leaders to coordinate efforts with patient associations.

A global pharmaceutical company specializing in biotech drugs for a rare disease needed to enhance awareness of the current standard of care among patient organizations, policy makers, and the general public.

Speyside was chosen from several leading firms to develop a strategy aimed at raising awareness and fostering sustainable engagement with local patient organizations.

Speyside crafted tailored engagement strategies by mapping stakeholders and analyzing the current landscape for the rare disease.

These strategies encompassed a series of workshops and informational sessions with state patient organizations, an ambassador program, and the development of various communication materials, including one-pagers designed for patients and healthcare practitioners.

• Conducted workshops and informative sessions in partnership with state patient organizations and the national federation.
• Distributed strategic communication materials to key audiences.
• Identified external leaders to support and coordinate efforts with patient associations.